Well, things have been going pretty good. Grace's cleft palate, ear tube, clogged tear duct surgery is postponed until 2/17 due to her having an ear infection. It's all cleared up now, thank goodness. She's doing well although she started grinding her teeth again :( She is making so much progress in therapy and her therapists are just thrilled, as are we. She is getting stronger every day and has even gained almost 3 pounds. I'm trying to bulk her up a bit as I have a feeling she'll lose some weight after her surgery. The surgeon told us to plan on being in the hospital for at least a week. I will be with her most of the time and our other kids will go to back up daycare. We've done this type routine before and it's hard but we make it work. We are just praying for a successful surgery the first time. Ian's cleft palate repairs have fallen apart and he still has a hole in the front. Grace's is much less severe though so we're hopeful. Feedings are still quite difficult but once her palate is healed, we'll really hit the therapy hard. Grace also recently got glasses. She is quite far sighted and has nystagmus(cross-eyes). We were able to find frames that are made specifically for kids with Down syndrome but she won't leave them on yet. They need to be adjusted properly. Once she has her surgery, the surgeon will actually put casts on her arms to prevent her from putting anything in her mouth. Since she won't be able to bend her arms, she won't be able to take her glasses off. We will really try to get her used to wearing them at that time. The kids really love Grace and are very protective of her. Sam and Ivy are big helpers. Ivy keeps an eye on her while eating as Grace loves to get bored with her bottle and play with it. She tips it upside down and since it has a huge hole in the nipple(she can't suck or swallow so the hole is huge to allow the food to flow out when she bites the nipple and gravity pulls it down her throat as she lies flat to eat), she can make quite a mess. I'm usually cleaning up mealtime stuff by then as it takes Grace quite some time to finish a bottle. Ivy loves the responsibility. Sam holds her arms for me when I change a messy diaper as her hands go right in it otherwise. Iris is so sweet when playing with her and Ian...well, he could really care less, lol. Jon and I have adjusted to life with 5 kids. It really isn't that much harder once you already are out numbered with 3. I'm posting some family pictures we had taken just a few days after we got home with Grace. I'm not really on the ball lately and haven't even mailed out Christmas cards yet. They are coming soon though :) So here they are:
Happy Family of 7!
Our Gorgeous Girls!
Our Adorable Boys!
Beautiful Grace Nadja!
Sunday, February 7, 2010
Update
Posted by Sarah Maples at 12:24 AM 10 comments
Wednesday, January 6, 2010
Giggly Girl!
Ok, so we've been horrible about posting since we've been home but seriously with 5 kids age 6 and under, who has time? After a rough couple weeks, things are going great now. Grace is really relaxing with us and we are in a routine. Her stimming noises have decreased although the teeth grinding has intensified a bit. Just yesterday, she started smiling quite a bit and today we got actual giggles from her. Turns out she's quite ticklish even though we had to "teach" her how to be. Kinda strange but she never responded to touch when we first adopted her. She's also recognizing her name as well. I will admit openly that our first week home was horrible and I cried A LOT wondering if we had done the right thing and if I would be able to accept the noises despite my super sensitive hearing issues. A lot of ongoing prayers and I can happily report that I'm so in love with this little girl and I really feel like her mom already. It took close to a year with each of our other kids to truely feel like their mom and not just another caretaker. Sure I loved them all right away but it took time for that mother/child bond to form. Grace is truely an angel on this earth and I can't imagine life without her now. I believe the drama we faced those first couple weeks was a blessing in disguise. What's equally sweet is how much our other kids adore her. As you'll see in the video, Iris is ALL about Grace and is "helping" me tickle her. Iris is VERY protective her baby sister and tells people not to touch her. Iris is also her biggest cheerleader and anytime Grace does something, no matter what it is, Iris says "good job Grace" with a thumbs up and much enthusiasm. Can't help but smile. My heart is so filled with love and joy tonight as I type this and I thank God for blessing our family and entrusting our 5 beautiful children to us. Enjoy this little glimpse of heaven and please ignore my annoying giggles. In Him, Sarah
Posted by Sarah Maples at 11:12 PM 7 comments
Friday, January 1, 2010
Planes, Trains, and Automobiles
Posted by Jon at 1:00 PM 6 comments